Monday, November 21, 2011

Why hast thou forsaken me?


Just kidding. Sounded like a nice dramatic header.

So, my last CT scan wasn't too hot. Some activity with my lymph nodes around my stomach area now. Why is it all about the lymphs? I forgot to ask Dr. Dummypants that.

She ordered a PET scan which is a CT scan plus some other scans to give a more accurate picture of what's going on. You get a glucose sort of solution into your veins and then the sugar is attracted tot he cancer cells so they can see where activity is taking place.

I was set for the PET scan on the 16th of November. 24 hours prior you have to eat a very low carb diet so that your sugars are not mucking up the results.
Dr. Dummypants said, however, that I would not need to take my normal steroid preparation (some steroid pills and Benadryl because of my allergy to the IV contrast for CT scans) because I wouldn't be getting the usual CT scan. Lovely, I hate taking the steroid prep.
HOWEVER...
when the scheduling nurse was talking to me she said "I'll call in your steroid prep" and I said "I don't need one" and she said "yeah, I think you do.. " and I said "could you please check?". So she checks and comes back saying "yeah, you need it so I'll call in the prescription yadda yadda".

As it happens, steroids can really raise your glucose levels. For the PET scan your glucose needs to be under 200. No problem.. except if you're taking steroids.
IDIOTS.
So along with not eating carbs for 24 hours, I had to wake up twice in the middle of the night to feed myself steroids all for nothing.
My sugar level was 240 and they were unable to administer the test. I'd been hooked up to an IV already (seriously how big is that needle anyway?) and sat there for 40 minutes getting pumped with saline when the nurse came in to tell me I had to go home.

I was angry but I always shrug that stuff off. I know they don't mean it but I've run into a lot of these types of things. But this time I KNEW I wasn't supposed to take the steroid prep and the woman did NOT, in fact, check. The nurse who assisted me before the scan was supposed to happen said they never give IV contrast... it's oral. So either that scheduling woman lied or misunderstood the contrast IV/oral.
ANYWAY
I have another appointment for November 28th.

I'm feeling pretty awful too. It feels like my lower back hurts and my kidneys. My back is very tender like it's bruised. I also have a lump on the side of my neck. JOY!!

It's really quite torturous at times. The fear, the anxiety, the waiting. It's an endless cycle. The only time I do feel OK is while I'm getting treatment. Physically it makes me feel poorly but mentally I think "well at least I'm doing something about it".
It's exhausting.
I guess I should try some yoga or SOMETHING to decompress.
Just an update. I don't feel like unlocking any interesting thoughts.
Shhh... quiet...
ZZzzzZzZzzzz

21 comments:

  1. I'm sorry I didn't read this sooner. What a drag. i'm hoping you're feeling much better now. I think you've had more than your share of medical mishaps, so that should be smooth sailing now. (( Hugz ))

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  3. I love you and will never forget you.

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  4. Rest in peace Melissa!

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  5. Neopets loves you. <3 We will neverr forget you. You made such an impact on everyone's lives.

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  6. You touched so many lives. Rest in peace Melissa

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  7. I miss you already. Hope you're somewhere better than here.

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  8. Love you so much, everyone will miss you..Thinking of you Jill and family.

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  9. You will always be with us, and your pets will always keep you company. Rest in peace.

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  10. When you feel the raindrops on your skin,
    know that these are her tears of joy.

    When the wind blows soft across your face,
    It is her hand's sweet gentle caress.

    The birds that cry and dance above you.
    Her shouts of joy, dance of jubilation.

    The scent of spring wafting 'tward you.
    Her smell, surrounding, comforting.

    She loved the earth, she has not left us,
    For all around you, she lives in what she loved.

    Such a beautiful bright, talented woman. I'll miss
    you Melissa.

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  11. You touched so many with your kind words, your fantastic artwork and your ability to put a positive slant on the most horrible of circumstances. I'm sorry I didn't take the time to know you better. Rest in peace xxx

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  12. I didnt have the pleasure of knowing you but i really wish i did. I dont think i have ever known anyone with such a positive and beautiful outlook on life. Its really heart breaking to know that i will never have the opportunity to meet such an amazing person. You faced this world with bravery and courage. I hope you found peace atlast -L

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  13. Rest in peace Melissa - you had such a big heart & you will be missed by so many.

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  14. You are dearly missed, Melissa. ILY.

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  15. Melissa... I miss you so much! I never thought it could hurt so much to lose someone that you only knew online. You meant a lot to me, though. There were many times when I was so homesick and lonely after moving to Malaysia. I'd come on the CWC board and chat with you and all my problems were gone. I hope you felt some of the same relief.

    Reading this blog shows me another side of you. Not only were you kind, talented, generous and funny.... but you were also tough as nails! I wish I had known what you were going through, but maybe it's better that the Neoboards were a place where you didn't have to talk about tests and treatment.

    I'm just one of many people around the world who miss you.

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  16. I'm one of many that can't believe you're gone. You're no longer in pain and are finally at peace with your Mom and Dad. You will be missed very much. Rest in peace, Melissa.

    ~Mel

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  17. Thank you, Melissa, for the kindness you showed to me, going out of your way on Neopets to make my nights a bit brighter. You will be missed but I will remember the words to a song:

    I'm already there, take a look around
    I'm the sunshine in your hair
    I'm the shadow on the ground
    I'm the whisper in the wind
    I'm your imaginary fried
    And I know I'm in your prayers
    I'm already there

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  18. May you dance across the galaxies and create your art with the stars.

    You will forever be missed but never forgotten.

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  19. Melissa. I am so sorry I didn't see this before. I want so much to hug you and tell you I love you. You were my cousin, "sister" and my friend. I was amazed by you. By your talent, your mind, your beauty and your strength. You have left a piece of yourself behind within my heart and soul. I love you and I know you are in a beautiful forest, next to a sparkling stream. Snow is gently falling around you, but you are not cold, and your lap is covered by the purring warmth of your kitties.

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  20. On a cold winter night, I couldn't understand why I felt such sadness in my heart. Then I looked up into the sky, and found a bright star shining radiantly upon me and instantly, the ice melted away.

    Melissa, you are the star who brought so much joy and hope to all the people you've met, both in 'RL' and on Neo. You inspired me and awed me countless times with your pure heart and kind words. Be at peace and continue to light up our lives as you lit up mine.

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  21. Not a day goes buy that you are not missed Melissa. We talk about you often... Love and miss you...

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